Tuesday, September 03, 2019

I finished reading that blog by the person who had terminal cancer, and unfortunately his final post, entitled "My Final Post", was not to report a miracle cure and that the cancer was gone and there was no more need to maintain the blog. I'm sure the hope he was hoping against was more than mine.

All that was done and dusted 3 years ago, and it was still sad when the end came and how. Actually no, it didn't matter how, just that the end came. There was a lot that was left out in his last days, I shouldn't wonder, but he would be forgiven if the pain he was in precluded blogging about it. It's not clear if the cancer killed him or if he "died with dignity", taking the killer drugs that under state law allowed him to end his life himself when the suffering became too great.

Ironically, he created what I think is a valuable document. One of his gripes early on when obsessively researching cancer after he was diagnosed (a quite common reaction), was that all of the testimony regarding treatment and drug therapies were by survivors. People testifying this or that was great or worked, but what about the people for whom those treatments didn't work? His blog now exists as a voice of someone who didn't survive, and even as his was stage 4 terminal cancer with little chance of long-term survival, he voices an experience of the various treatments he underwent, while clearly stating the kind of patient he was: a cancer specialist's nightmare, i.e., one who wasn't willing to sacrifice quality of life. He was willing to forego treatment, i.e., die sooner, if it meant day-to-day present moment pain was more manageable, rather than subject himself to the mercy (or lack thereof) of the medical/big pharma/insurance industry and their mess of a system with whatever treatment they conjure to live longer but in considerably more misery. What's worth what to whom is totally subjective and up to the individual.

And it should not be missed that the big turning point in his decision about continuing treatment, which was to not continue treatment, i.e., give up, i.e., fuckitall, was because of the mental frustrations dealing with the quixotic clown show (or goat rodeo, as he might call it but actually doesn't) of the health care industry and its administrative system (not the hands-on medical professionals trying to treat him).

My personal take from his experience is that I'm pretty confident I'm not fooling myself about my attitude towards death or dying. He would write things distinctly from the perspective of someone facing death, and I would recognize it as the reality-perspective I steep in. To him it was something new he was facing and realizing. It's my normal. Like from his normal, he would forewarn readers when he would be writing about death and dying, assuming it was unpleasant and depressing, but for me that was the stuff I wanted to know. It was my version of what a cancer patient starts researching obsessively once diagnosed. It's the distinction between someone living an ordinary life and suddenly coming to terms that this life must end, and having that as an acknowledged assumption from the start. Am I dying of anything? Not that I know of. Am I dying? We all are, honey.

Another take away from his blog is that personal blogs can endure! It's been almost three years since his last post and still I found his blog and read it and found it meaningful and worthy (even with its shortcomings). I don't remember how I found it. Sometimes after I do a web search I'll do the same search with "blog" added at the end. I think that's how I found his, but I forget the search term and haven't been able to re-create it. And anyway that technique of looking for blogs has become less effective as search engines, especially "evil is OK!" Google, gear and funnel results towards corporate, profitable or trending hits. Web searches are no longer democratic emphasizing the actual search terms (otherwise when you search "patagonia", for example, you'd get the place first, not the company. If someone created a successful company called "Suicide, Inc.", their website would probably end up superseding the topic), and it's almost impossible to find personal blogs worth reading; little voices who are just stating their experience and reality. It was hard enough even when Blogger had a "Next Blog" function that led to a random Blogger blog, but Google removed that citing "lack of use", ensuring absolute "non-use".

A possible good thing about that is that it's more safe to maintain a personal blog because the chances are low that someone they know will randomly find it. A lot of people I knew ended their blogs over concerns about what they were putting out and who might find it and possible unexpected and unpredictable consequences. I was never concerned about that because I never felt anyone would care about anything I put out.